Parent Contacts

The following families have volunteered as parent contacts. Please feel free to contact them for information about their children and their experience with Coffin-Lowry syndrome.

Australia	Tegwen Vella, 1865 Portarlington Rd, Drysdale Vic 3222 E-Mail Son: Phil, DOB 3/19/94
Australia	Mrs. Carol Webb, 1A Hilton Road, Claremont, Tasmania 7011 Telephone: 03 62498874 - E-Mail Son: Matthew, DOB 6/9/86
Belgium	Madame Annie Nameche, rue Constant Biot 3, B-5170 Lesve Telephone: 0032(0)81 43 42 78 Daughter: Elodie, DOB 9/14/1991
Canada	Elizabeth Brown and Edwige Miller, 272 Phillips Street, Kingston, Ontario K7M 3A4 Telephone: (613) 530 2585 - E-Mail Son: David, DOB 2/12/2002
Canada	Alan and Diane Engelstad, 25 Fermanagh Ave, Toronto, Ontario M6R 1M1 Telephone: 888-411-5311 - E-Mail Son: Jeremy, DOB 2/29/1996
France	Annie et Alain Huet, 15, rue d'en haut, 62123 Bailleulval Telephone: 03.21.55.97.13 - E-Mail Language: French Son: Florian, DOB 12/18/1992
France	Nicole Grosdemange, 90 rue des Martinets, 88290 Saulxures-sur-moselotte Telephone: 0329246862 - E-Mail Language: French Son: Loic, DOB 6/20/1990
Great Britain	Bob & Eileen Evans, 32 Leed Street, Sandown, Isle of Wight Telephone: +44 (0) 1983 404135 - E-Mail Son: Robert, DOB 7/19/1992
	Kerrie Thomas, 37 Pen-Y-Grug, Rassau Ebbw-Vale, Gwent, South Wales NP23 5XB Telephone: 01495 303321 - E-Mail Daughter: Amy, DOB 5/20/1997
	Wendy Wilson, 107 Ashburnham Road, Northhampton, NN1 4RA Telephone: 01604 710444 - E-Mail Son: Conner, DOB 2/8/2002 Son: Thomas, DOB 4/12/2003
Greece	Mattina Mallos, Alkyonis 37-39, 11146 Galatsi, Athens Telephone: (301) 22.23.298 - E-Mail Daughter: Maria, DOB 2/7/86
Netherlands	Karin Schuurman, Ibisstraat 45, Badhoevedorp, NETHERLANDS Telephone: 0031208900217 - E-Mail Son: Dirk, DOB 11/29/1998
Northern Ireland	Thomas Sands, 101 Pinebank, Craigavon Co, Armagh, BT65 5BY Telephone: 02838343695 - E-Mail Son: Damien, DOB 6/25/1982
Northern Ireland	Mark and Christine Hawthorne, 13 Abbots Walk, Bangor, Co.Down, BT20 4EL Telephone: 02891450375 - E-Mail Son: Matthew, DOB 4/27/1994 Son: Samuel, DOB 4/7/2006 Daughter: Rebekah, DOB not on file.
Switzerland	Christine Moner, Rue de la Madeleine 35, 1800 Vevey, SUISSE Telephone: 00.41.21.921.07.11 - E-Mail Language: French Daughter: Sarah, DOB 6/30/1993
United States
Alabama	Theresa Moxley, 100 Kentish Place, Madison, AL 35758 Telephone: 256-461-0199 - E-Mail Son: Matthew, DOB 6/21/93
California	Suzanne Solorio & Ivan Lopez, 5700 Hatchery Court, Penngrove, CA 94951 Telephone: 707-792-2970 - E-Mail Son: Cristian, DOB 7/3/2000 Son: Daniel, DOB 7/14/2003
California	Mende and Brian Machado, PO Box 987, Tuolumne, CA 95379 Telephone: 209-928-4990 - E-Mail Son: Cody, DOB 8/30/2003
Delaware	Sherry Medek, 621 Pepperbush Court, Wilmington, DE 19808 USA Telephone: 302-239-1013 - E-Mail Son: Ryan, DOB 10/24/1980
Florida	Sandra Hoskins, 11441 Waterford Village Dr., Fort Myers FL. 33913 Telephone: 239-561-9793 - E-Mail Son: Alec, DOB 5/28/1994
Georgia	Sam and Mary Painter, 2226 Richard Road, Augusta, GA 30906 Telephone: 706-560-1960 - E-Mail Son: David, DOB 8/29/1989
Illinois	Terri Stephens, 1323 Tilton Park Drive, Dixon, IL 61021 Telephone: 815-284-3103 - E-Mail Son: Jeffrey, DOB 8/10/1994
Indiana	Dianna & Donald Garvin, 103 E. Harriman St, Bargersville, IN 46106 Telephone: 317-422-1861 - E-Mail Son: Thomas, DOB 10/12/1990
Kentucky	Kim Dabe, 2219 Dixon Street, Ashland, KY 41102 USA Telephone: 606-369-6109 - E-Mail Son: Lucas, DOB 4/12/1997
Maine	Mark & Lynn Richards, 90 Hunts Meadow Road, Whitefield, ME 04353 Telephone: 207-549-5511 - E-Mail Son: Andrew, DOB 7/21/86
Maryland	Bob & Maddi Klein, 4221 Thorncroft Terrace, Olney, MD 20832 E-Mail Grandaughter: Jennifer, DOB 7/18/84
Massachusetts	Ronald and Deborah Gallagher, 45 Harrison Avenue, Williamstown, MA 01267 USA Telephone: 413-458-2213 - E-Mail Son: Kelly, DOB 3/14/1991
Michigan	Maureen Guy, 3857 South Creek Drive, Rochester, MI 48306 USA Telephone: 248-340-0452 - E-Mail Daughter: Carly, DOB 7/26/1988
Minnesota	Greg & Lissa Walter, 20863 Tyler St. NE, East Bethel, MN 55011 Telephone: 612-434-4341 - E-Mail Son: Jacob, DOB 11/29/92
Missouri	Phebe Kanaratnam-Roberts, 4221 Wales Columbia, MO 65203 Telephone: 573-446-1730 - E-Mail Son: Shane, DOB 3/12/1994
North Carolina	James and Kristina Smith, 3384 Hawthorne Street, Hope Mills, NC 28348 Telephone: (910) 426-0674 - E-Mail Son: Anthony, DOB 4/16/1992 Son: Timothy, DOB 2/1/1994
North Carolina	Rosalia & Roberto Ornelas, 8416 Alicia Brittany Ln, Charlotte, NC 28212 Telephone: 704-566-3742 - E-Mail Son: Joshua, DOB 6/10/2004
Ohio	Martha Fortune, 656 N 15th St., Sebring, OH 44672 Telephone: 330-938-9371 - E-Mail Son: Joseph, DOB 6/21/1988
Pennsylvania	David and Kathy Myers, 144 Cumberland Ave, Carmichaels, PA 15320 Telephone: 724-966-2369 - E-Mail Son: "B.J.", DOB 4/29/1989
	Kathy and Rob Garrison, 786 Garner Run Road, Waynesburg, PA 15370 USA Telephone: 724-627-9359 - E-Mail Son: Noah, DOB 10/11/1999
	Cruz and Angel Vargas, 185 W. Gordon St., Allentown, PA 18102 Telephone: 610-570-4743 - E-Mail Son: Jaydrien, DOB 7/14/2000
Texas	Lanette King, 1116 Tyra Lane, Forth Worth, TX 76114 Telephone: (817)238-3254 - E-Mail Nephew: Allen, DOB: 1/21/89
	Gracie Sifuentez, 1128 Germany Drive, Cedar Hill, TX 75104 Telephone: 214-802-4689 - E-Mail Son: Felipe, DOB 3/8/1981
	Steve and Sherri Smith, 2709 Hampshire Dr., Garland, Texas 75040 Telephone: (972) 530-1278 - E-Mail Son: Brett, DOB 6/25/1984
Wisconsin	Susan Malak, 3412 E. Van Norman Ave, Cudahy, WI 53110 Telephone: 414-481-1303 - E-Mail Son: Mike, DOB 2/3/93