Welcome

Welcome to The Coffin-Lowry Syndrome Foundation (CLSF). The purpose of CLSF is to provide a clearinghouse for information on Coffin-Lowry Syndrome (CLS), and to provide families affected by CLS a general forum in which to exchange information, ideas and advice.  CLSF provides family matching services, telephone support, online discussion forum , an informational database and publishes an on-line newsletter, CLSF News. The newsletter is available in hard-copy free of charge to members without internet access. The online discussion forum is restricted to families, caregivers, teachers and medical professionals who have direct connections with CLS individuals.

Researchers:  Need volunteers for a research study? We are anxious to help. Email us and your volunteer opportunities will be presented to the membership through CLSF.

Students: Please refer to the Frequently Asked Questions (FAQ) page, the Characteristics page, and the Literature page before writing to ask questions.  There are no additional pamphlets or hard-copy materials available. Students are not allowed access to the online discussion forum in order to protect the privacy of the members.

CLSF is a tax-exempt non-profit corporation under IRS code 501(c)(3) and is funded solely by donations. EIN 20-3377465

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Coffin-Lowry Syndrome Foundation, Attn: Mary C. Hoffman, 3045 255th Avenue S.E., Sammamish, WA 98075

Email us or call 1 (425) 427-0939 Best time to call is between 6pm-9pm Pacific Standard Time.

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".....we can reject everything else: religion, ideology, all received wisdom. But we cannot escape the necessity of love and compassion... This, then, is my true religion, my simple faith. In this sense, there is no need for temple or church, for mosque or synagogue, no need for complicated philosophy, doctrine or dogma. Our own heart, our own mind, is the temple. The doctrine is compassion. Love for others and respect for their rights and dignity, no matter who or what they are: ultimately these are all we need. So long as we practice these in our daily lives, then no matter if we are learned or unlearned, whether we believe in Buddha or God, or follow some other religion or none at all, as long as we have compassion for others and conduct ourselves with restraint out of a sense of responsibility, there is no doubt we will be happy."  - His Holiness the Dalai Lama