Coffin-Lowry Syndrome Foundation

Support for families affected by Coffin-Lowry Syndrome


The purpose of CLSF is to provide a clearinghouse for information on Coffin-Lowry Syndrome (CLS), and to provide families affected by CLS a general forum in which to exchange information, ideas and advice. CLSF provides family matching services, telephone support, an online discussion forum, an informational database and publishes a newsletter, CLSF News. The newsletter is available in hard-copy free of charge to members. The online discussion forum is restricted to families, caregivers, teachers and medical professionals who have direct connections with individuals who have Coffin-Lowry syndrome.