Coffin-Lowry Syndrome Foundation

Resources

These are personal recommendations from parents. CLSF receives no compensation and accepts no advertising from these companies. Please contact us with your recommendations.

Incontinence Products

I've tried many different brands over the years, and I recommend Tranquility ATN (All-Through-the-Night) fitted briefs for both absorbency and odor control. These companies both carry the Tranquility brand:

• http://www.cheapchux.com  Free Shipping in the continental USA. Family- owned.
• http://DignityMedicalSupplies.com

Most of these companies will send you free samples if you pay for shipping & handling.

 

Clothing

http://blair.com Good selection of partial or full elastic-waist pants

Fun Stuff

Needak.com Needle in a Haystack Durable Toys - Wagons, pedal cars, tricycles, and more. Kettler pedal cars rated up to 250 lbs. Low center of gravity make them ideal for children with balance and coordination issues.

NEEDAK, Inc.
4538 White Rock Lane
Burlington, NC 27215
1-800-311-6333 or 336-513-0319 call 9-5 ET M-F
Fax 1-336-513-0486 anytime

Speech Therapy

http://www.talktools.net/ TalkTools - When Sara Rosenfeld-Johnson founded ITI and began teaching her oral placement therapy techniques, the therapists and caregivers attending her courses consistently expressed a desire for tools specifically designed to help them implement what they had learned. In response, she created the TalkTools® brand and developed a series of user-friendly products to correspond with her hierarchical approach to oral placement therapy. Many of these items, including the original Horn and Straw Hierarchies and Jaw Grading Bite Blocks, are now household names in the oral placement field and are available exclusively through TalkTools Therapy™. Through constant efforts to improve existing products and develop new tools to meet emerging needs, TalkTools Therapy™ has positioned itself as a primary worldwide source for oral placement, sensory, and feeding therapy supplies, and the popular brand TalkTools®.

Transportation

Perfectly Safe Site devoted to child safety products. Buckle Guard slips over a standard-sized car seatbelt buckle with no tools required for installation. Tested and approved child-resistant pull and turn cap hides release button from a child's curious fingers. Helps to prevent children and disabled adults from opening their seat belts while riding in a motorized vehicle.

Hygiene

The Collis-Curved Toothbrush  Maintaining good dental hygiene is a continuing challenge for parents of CLS kids, who are often not effective in brushing their own teeth. A powered toothbrush such as the InterPlak is the most effective solution, but not all CLS kids will tolerate the sensory stimulation of a powered toothbrush or might bite down on the toothbrush while it is running.  If an Interplak will not work for your family member, the Collis-Curve toothbrush may provide a more effective solution than an ordinary toothbrush for manual brushing. The Collis-Curved toothbrush cleans both sides of the teeth at once.

Collis-Curve Toothbrush
6110 California Road
Brownsville, TX 78521
1-800-298-4818
Ph: (956) 546-4818
Em: brushteeth@aol.com