Coffin-Lowry Syndrome Foundation

Support for families affected by Coffin-Lowry Syndrome


Send your donations to:

The Coffin-Lowry Syndrome Foundation
Attn: Mary Hoffman
675 Kalmia Pl NW
Issaquah, WA 98027 USA

Make checks payable to "The Coffin-Lowry Syndrome Foundation".  U. S. Funds, please.

Note that CLS parents sometimes organize  fundraising events  for CLSF. If your donation is associated with a particular fundraising event, please note this on your check so that the event organizers receive credit for their efforts.

If your employer has a Giving Program, consider registering CLSF with your employer's program and have your donations made through payroll deductions.

The Coffin-Lowry Syndrome Foundation used to be registered with but will be shutting down this relationship as soon as they transfer all donations that have been made to date. As of 9/19/17 no funds have been sent to CLSF from JustGiving and I am engaged in a battle with thier customer support staff. You may find this article written about JustGiving and how much money they actually make interesting.  I apologize for any inconvenince this may have caused.