Coffin-Lowry Syndrome Foundation

Support for families affected by Coffin-Lowry Syndrome


Coffin-Lowry Syndrome Foundation
Attn: Mary C. Hoffman
675 Kalmia Pl NW
Issaquah, WA 98027

(425) 427-0939 after 5 pm PST
E-Mail Us

"Thank you for having this website, I have referred to it many times over the last 7-8 years and regret that I haven't registered before now."   - Dianna Garvin, Bargersville, IN

"I am so grateful for this foundation. I really don’t know what I would do without it."  Sharyn McGrath, Victoria, Australia

"Reading the messages brought back memories of how desperate I felt when Shane was diagnosed and was very thankful for the existence of this foundation where I found much support, help and comfort."  - Phebe Kanaratnam-Roberts


Please refer to the FAQ, Characteristics and Literature sections of this site before writing to ask for information. There are no additional pamphlets or hard-copy materials available.

In order to protect the privacy of the member families, students are not allowed access to the Facebook group.


Need volunteers for a research study? Email us and your volunteer opportunities will be presented to the membership through CLSF.