Coffin-Lowry Syndrome Foundation
Attn: Mary C. Hoffman
675 Kalmia Pl NW
Issaquah, WA 98027
(425) 427-0939 after 5 pm PST
"Thank you for having this website, I have referred to it many times over the last 7-8 years and regret that I haven't registered before now." - Dianna Garvin, Bargersville, IN
"I am so grateful for this foundation. I really don’t know what I would do without it." Sharyn McGrath, Victoria, Australia
"Reading the messages brought back memories of how desperate I felt when Shane was diagnosed and was very thankful for the existence of this foundation where I found much support, help and comfort." - Phebe Kanaratnam-Roberts
StudentsPlease refer to the FAQ,
Characteristics and Literature sections of this site before writing
to ask for information. There are no additional pamphlets or
hard-copy materials available.
In order to protect the privacy of the member families, students are not allowed access to the Facebook group.
Need volunteers for a research study? Email us and your volunteer opportunities will be presented to the membership through CLSF.